My orchidopexy surgery

I was nearly 3 ½ when I had surgery in the late 1980’s at the Queen Elizabeth Medical Centre Nottingham (QMH) to correct an undescended testicle. It’s the most memorable day of my life – for all the wrong reasons.

Undescended testes (cryptorchidism) are increasingly common in baby boys. If they don’t descend, the ‘cure’ is surgery, and the operation is called an orchidopexy. I’ve put together a separate page on the treatment of undescended testicles, but if you want a quick look at what is done, this YouTube video shows roughly the procedure performed on me (on the opposite side).

That’s all very clinical, very medical. But what’s it like for the child? For the human story, read on…

Before the surgery

The day I was born the hospital spotted I had an undescended testicle. It wasn’t a shock as it runs in the family. I was a happy and healthy child, and my favourite toy at this time was my sandpit.

I remember us visiting the hospital once, maybe twice – the time before the surgery is blurred – to see an indian lady (she was the consultant). I didn’t know why we were there, and vividly remember getting up on the table and being examined on all fours by her (the knee-chest position), and her squeezing my scrotum from behind.

I didn’t understand why she was touching me, why mummy and daddy had brought me here. It wasn’t unpleasant being touched, but I didn’t want to be.

There was a nurse sat in the room too. She sat to the side of the examination table and watched everything. Even aged 3 I didn’t want someone staring, and felt it ‘wrong’.

Staff Nurse Andrea writing up her notes in a 1980's hospital

I remember crying as the consultant squeezed my scrotum. The next,vivid memory is sitting on the floor playing with a wooden carousel with red, blue and yellow painted horses while the consultant talked to my parents. Needless to say I thought that was it and the worst was behind me…

I now know the hospital was a teaching hospital and quite progressive for the time. We had a tour of the hospital beforehand with other parents and children, I was given a toy medical set and a paper gown, hat and mask to play with.

Other boys at nursery were being ‘done’ about the same time, and I remember clearly one boy who had his undescended testicle done about a month before me (recalling his face & us playing together, but not his name). My mum told me to ask him about it, but I never did. I didn’t know how, and even then I was embarrassed and knew it wasn’t something we talked about. I was aware people were talking about me: I knew the ladies at playschool were talking about me in the corner with my mum.

It turned out (to my parents’ disappointment) the nice lady consultant wasn’t the one who was going to do my surgery – she only did difficult cases. My surgeon was a man who was later described as “horrid” and having “absolutely no bedside manner” by my parents. I don’t remember him.

The Surgery

Late one afternoon Daddy took me to the hospital and I had to take my trousers and pants off and lie on my back in the frog position while two men examined my groin. One of them had a mustache The room was dark with a very bright light above my genitals, and Dad stood behind them.

With a pen they drew a question mark on my right thigh (not until I was anesthetized would they decided this testicle was retractile and wouldn’t need surgery), and a different mark on my left thigh (an arrow? A cross? – I don’t remember) to mark it was undescended and needed operating on. I enjoyed being centre of attention but had no inkling of what was coming next…

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I vaguely remember leaving home the next morning, and Mum holding me tight and looking very upset, and Dad taking me for a drive in our car.

At some point they put a clear plastic patch on the back of my left hand filled with cream (numbing cream) which was a source of fascination for ages afterwards.

The next bit I remember so clearly it’s like watching a movie: a bearded man in a white coat is in our room (Dad was staying with me in hospital and we had our own room) giving me something horribly sweet to drink.  Then I woozily recall Dad getting me changed into a gown, while he put on these pyjamas made of a shiny dark green material. The last I properly remember is Dad telling me I needed to have a wee, but I don’t remember doing it…

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And that’s where my memories should stop. Yet now there’s a scary, horrible period of hazy memories, sensations and thoughts. I blurrily sense bright lights moving past overhead. I semi-recall noises and a woman’s hands grabbing me. (I later found out I got off the trolly on the way to the operating theatre and tried to run away – says a lot about my subconscious state).

There’s more bright lights and inhuman figures without faces clustered round my torso. Authoritative, cross voices. I didn’t know what was going on, I felt terrified and was completely powerless. I wanted to scream; why was Daddy letting this happen? I wanted to move but was unable to. I feel hands on me, holding me down. And background sounds: voices, the clink of items (bottles? metal against metal?).

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Everything goes black.

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And there my memories should stop.

But they don’t. There’s a gap, then I sense a shining, bright, warm orb coming towards me from above my head, and hovering below me. I am totally relaxed. I don’t see anything, only light and dark. I feel sensations of pressure on my inside left thigh, an awareness that my legs are apart. Gentle pressure on my left groin. Sounds of people moving around, of clinking, metal on metal. Indistinct voices.

And then nothing.

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I next remember is waking up in a room (our room?) with orange light streaming through the drawn curtains. Daddy and a nurse were sitting to the left of the bed and there was a table too.

I had so much to say, so many dreams full of creatures to describe.

I felt euphoric. I was talking nineteen to the dozen and Dad told me to be quiet and go back to sleep.

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I don’t then remember anything until breakfast the next day (we stayed in the hospital overnight), which we went and ate in a brightly painted area at a small table which was too low for Dad but just right for me, and I was allowed white toast which was a treat. There’s photos of the time I’m asleep/sitting up in bed half-asleep in the family photo album (what kind of family commemorates this experience???) – Dad apparently nipped home to get his camera while I was in the operating theatre.

groin-post-surgery
The results of the surgery. A view as seen by the surgeon – there was a massive great plaster over the incision by the time I woke up

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While the undescended testicle surgery was successful by any medical measure, its psychological effects on me – especially of remembering bits around the surgery and slowly recalling more – weren’t kind, and shaped the next 3 decades of my life. Continue reading in Life after undescended testicle surgery.

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10 thoughts on “My orchidopexy surgery

  1. I’m very sorry things went like this for you! As far as I know, things rarely go wrong with anaesthesia, but when they do, it can be traumatic. The two positive aspects are that you don’t seem to remember any physical pain from the operation, and that medically, the result was successful. Congratulations on working through your issues! I hope it gets a little better every day, and I wish you all the best!
    My baby son has one undescended testicle all the way up in the belly, and one retractable; he will need surgery. I hope all goes well. To me, he is perfect nevertheless – no matter where his testicles are. Some people need a little help (for instance, I had eye surgery as a child), and I am glad it is available nowadays.
    Kind regards, Maria

    1. Thank you for your kind words Maria, and I wish your son all the best when he has surgery 🙂

      If you have any questions, feel free to ask. Do you remember anything of your eye surgery?

      1. I must have been about 10, and all I remember is a scratchy feeling in the eye from the stitches afterwards. There is a very vague idea of what the clinic looked like.
        Regarding my son, I hope he won’t need two operations – one is worrying enough! He hasn’t had any hormone treatment yet. Have you come across any (scientific or anecdotal) evidence of alternative methods working for undescended testicles?

      2. I hope he won’t need two operations – one is worrying enough!

        You wrote they have “found his undescended testicle all the way up in the belly” – is it palpable or was it found using ultrasound? I am wondering if you mean he might need two operations (one for each side), or potentially two to bring this one down if the ‘pipework’ is too short?

        I will be interested to hear how/if they treat his retractile testicle. There is a body of evidence saying they do not need to be treated as retractile testicles will descend normally at puberty; there is also some evidence that acquired undescended testicles are more common than previously thought. I summarised what I read here but should’ve referenced the papers – sorry, I will do better next time!

        Have you come across any (scientific or anecdotal) evidence of alternative methods working for undescended testicles?

        I have a half-finished page on chiropractic claims (if you want to try something in the interests of furthering scientific research, this was the best I found) and wrote the page on testicular massage to explain why it doesn’t ‘fix’ undescended testicles. Given the physical way testicular descent is often blocked there is little to suggest alternatives would work, though I would be more hopeful regarding retractile or ascending testis.

  2. The undescended testicle was found by ultrasound, and I’m worried about the pipework possibly being too short. Will let you know what they say about the retractile side. I expect they may also advise hormone-therapy before going for the operation.
    In the meantime, we will try reflexology (there is no harm) and I will ring a chiropractor. Thanks for your research!

  3. He will be 1 year old in 2 days. We have been going to the chiropractor and doing reflexology – no effect so far. They said there was no need for hormone therapy as the palpable testicle is well-formed. Now we are waiting for an operation date this summer.

  4. Another update: My son has now had the first operation of a two-stage Fowler-Stephens orchidopexy. It was done as a laparoscopy. They found that the testicle was indeed all the way up in the belly, and they put titanium clips on the main blood vessels. The second stage is in December, when the testicle will be moved into his scrotum. So far, all is fine. He took the operation very well, fortunately. Fingers crossed, the next one will go smoothly, too!

  5. I had this procedure when I was a kid and would do anything to reverse it. Every single person I’ve spoken to who has had it has a testicle that is usually less than half the size of the other (sometimes even smaller)which is underdeveloped and doesn’t do much. In my case I’ve also been left with varicoceles and permanent nerve damage from the scarring. My healthy testicle also often rubs against the underdeveloped one which has been poorly stitched in place.

    The procedure is described as having a 90% success rate but the criteria for this is merely that the testicle is in the scrotum and has adequate blood flow – even if it may not function properly. So claims of it improving fertility is quite contentious and I have even come across a study showing that people who didn’t have the procedure and lived with one testicle had better semen quality than those who did. And in those who did, it is still the healthy testicle which accounts for the fertility.

    They should admit that they do it for psychological reasons. Even still I would much rather have one testicle and be at my optimum function than have an underdeveloped blob with chronic pain and varicoceles – which mind you, are known to deplete you of your testosterone, which is probably the most important thing as far as mood and mental well being.

    Parents need to be made aware of the risks of this procedure. It is not simple at all, and perhaps living with one isn’t as bad as you might think.

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